The Sickle Cell Society beat more than 350 organisations from all over the UK to be one of the eight winners of the 2018 GSK IMPACT Awards, a national award that recognises charities that are doing excellent work to improve people’s health and wellbeing.
City and Hackney Clinical Commissioning Group have worked with the Sickle Cell Society locally for many years and most recently funded them to run a peer mentoring project for young people.
An estimated 15,000 people in the UK have sickle cell disorder, which is an inherited blood disorder mainly affecting people of black African and African Caribbean heritage. The condition can cause chronic fatigue, pain, damage to vital organs and leads to early mortality.
The Sickle Cell Society offers community-based services and influences national policy. It has a national telephone helpline offering support and information. It also runs a mentoring scheme for younger people with the condition and its Breaking Down Barriers outreach programme targets people from Portuguese-speaking and French-speaking communities.
In 2016, it produced guidelines on blood transfusions that will improve the experience of people with sickle cell disorder by causing less discomfort and improving efficiency. It is estimated that this could save the NHS £13 million per year. It has also worked to improve screening of pregnant women at risk of having a child with sickle cell.
Watch the below video for an overview of how the Sickle Cell Society Supports and visit their website for more information.