Learning Disability Mortality Review programme


People with a learning disability often have poorer physical and mental health than other people and may face barriers to accessing health and care to keep them healthy. Too many people with a learning disability are dying earlier than they should, many from things which could have been treated or prevented.

The learning from deaths of people with a learning disability (LeDeR) programme was set up as a service improvement programme to look at why people are dying and what we can do to change services locally and nationally to improve the health of people with a learning disability and reduce health inequalities. By finding out more about why people died we can understand what needs to be changed to make a difference to people’s lives.

What is a LeDeR review?

In a LeDeR review someone who is trained to carry out reviews, usually someone who is clinical or has a social work background, looks at the person’s life and the circumstances that led up to their death and from the information they have makes recommendations to the local commissioning system about changes that could be made locally to help improve services for other people with a learning disability locally. They look at the GPs records and social care and hospital records (if relevant) and speak to family members about the person who has died to find out more about them and their life experiences.

Further information can be found on the NHS England and Improvement website.

NHS City and Hackney CCG

City and Hackney is committed to making improvements for people with a learning disabilities so that everyone living in the City of London and Hackney can expect and receive the highest quality health and social care, and have a long and fulfilling life.

We have included links to download our LeDeR Steering Group Membership List, and our LeDeR Annual Reports for 2018/19 and 2019/20. Please do not hesitate to contact us at CAHCCG.Quality@nhs.net if you have any questions.

NHS City and Hackney CCG

  1. LeDeR Steering Group Membership List
  2. LeDeR Annual Report 2018/19
  3. LeDeR Annual Report 2019/20

National Reports and Guidance

  1. National LeDeR Annual Report 2018
  2. The Government’s response to the 2018 LeDeR Annual Report
  3. NHS England and Improvement’s Actions from Learning of the 2018 LeDeR Annual Report
  4. National LeDeR Annual Report 2019